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Why Mom Grieves Deaths of Her Kids with Rare Disorder Despite Them Being Alive: ‘Is This Real Life?

< 1 min read

Julia Erman, a mom from east Tennessee with two children who have a rare genetic disorder, is gaining attention on TikTok for openly sharing her feelings about her children’s uncertain futures. With over 128,000 followers, Erman frequently discusses the emotional challenges of parenting special needs kids, including the fear of outliving them. She openly reflects on the anticipated loss, including her thoughts on how it might happen and how she will cope. Erman explains that sharing these experiences on social media helps her process her grief.

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