Lesley Cyford’s eldest son Landon was born in September 2010 with pontocerebellar hypoplasia, a rare genetic condition that causes underdevelopment of the pons and cerebellum sections of the brain, causing significant disability. In Landon’s case, it left him unable to sit, crawl, walk or use his hands. He receives nourishment through a feeding tube. He is dependent on the care of others just to survive.
