In Kentucky, families with children who have severe health conditions can access Medicaid support through waivers. However, many face significant challenges. Jeremy Haydon was initially told he would need to give up his parental rights to secure specialty care for his son, but a state representative helped him obtain a “single case agreement” for immediate care. In contrast, Kimberly Hurt faces a daunting wait for a “Michelle P waiver” for her daughter with severe autism, with a wait list extending 8-10 years and over 5,000 children ahead of her. The overall wait list for waivers has grown significantly, from 12,723 to 14,849, highlighting a critical issue of inadequate funding and prioritization in the state budget.
https://www.wave3.com/2024/08/05/waiver-wait-list-growing-swallowing-hope-parents-special-needs-kids
