Flor Ramirez shares her journey as a mother raising her daughter, Mirlee, who has Apert Syndrome, a rare genetic disorder that fuses bones in the skull, hands, and feet. Two years after the diagnosis, Mirlee, now two years old, has made significant progress, achieving milestones like running and playing, despite undergoing seven surgeries and ongoing therapy at the Children’s Rehabilitation Institute TeletonUSA (CRIT). However, outside the supportive environment of CRIT, Ramirez faces challenges, including bullying and discomfort in public spaces, as Mirlee becomes more aware of her condition and the reactions of others. This duality highlights both the progress Mirlee has made and the social difficulties they continue to encounter.
